tag:blogger.com,1999:blog-4293045677481687367.post1102565446302088259..comments2020-03-05T20:51:57.540-06:00Comments on Dysautonomia: My Journey, My Battle, My Victory, My Life: eating and fear of getting sick...Mirandahttp://www.blogger.com/profile/07401223927172594228noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-4293045677481687367.post-52516518685421797662012-02-20T12:31:01.314-06:002012-02-20T12:31:01.314-06:00I got dysautonomia 13 years ago, when I was sixtee...I got dysautonomia 13 years ago, when I was sixteen. At that time, the disease was totally unknowned in Chile so I was diagnosed like a "extremely stress sensitive" person, and a hypochondriac. So when you people also say how hard it is not only to cope with the disease but also with healthy-but-not-empathetic people I smile to myself. it sounds crazy, but I feel happy when I read all these comments. I finally belong somewhere. You guys understand. It has not been easy. The first year was hell. Besides fainting the pain was intolerable. I got fibromyalgia. But somehow I finished school with excellent grades, though I had to give up my dream of becoming a doctor because shifts were out of question. I'm a strategy consultant now, and although I've had to take several times off because of dysautonomia crisis, I've manage to survive. I understand and cry with you when you say how much you hate being trapped on this broken body. Right now I'm on medical absence from work because I'm living the side effects of antidepressants withdrawal syndrome, which has been like coming back to first year. I got up this morning with all my intention of making this day a productive one, but my body told otherwise. And for the first time I got this terrible sensation after eating. This is why I came to this blog. But let me tell you something. It's not all lost. One the one hand, it could be worst. We could all be dead from this disease without our current treatment, and we have to be thankful for not having the worst type of dysautonomia. Those poor folks don't even have strength to write. On the other hand, this condition allow us to value life itself, and we do have some windows of time to enjoy it. There is a lot of people in perfect conditions but suffering for the stupidest things. Sure, is not perfect. There is a lot of misunderstanding. But we live our lives taking advantage of every flow of energy because we know it could end any minute. Let's support each other when we feel blue and encourage us to live to the fullest when we feel ok. Thank you so much for your sharing, it helped me to cheer myself up.Veronicahttps://www.blogger.com/profile/00267104622242292606noreply@blogger.comtag:blogger.com,1999:blog-4293045677481687367.post-56615107441170492082011-06-15T09:17:59.084-05:002011-06-15T09:17:59.084-05:00I think that you just wrote about my life! I have ...I think that you just wrote about my life! I have three boys at home and I have the same fear being sick with them here. Thanks you letting me know that I am not alone.Gingerhttps://www.blogger.com/profile/15346615225223168942noreply@blogger.comtag:blogger.com,1999:blog-4293045677481687367.post-88138247181865551772011-03-18T20:15:11.399-05:002011-03-18T20:15:11.399-05:00I feel your pain. I too have dysautonomia and trou...I feel your pain. I too have dysautonomia and trouble with eating. Had a pacemaker for my heart put in, but that kicks in every time I eat. Which gives me terrible heartburn as well. <br />Doctor to doctor to another doctor, no one seems to really understand what we go through.Unknownhttps://www.blogger.com/profile/05459527375308667396noreply@blogger.comtag:blogger.com,1999:blog-4293045677481687367.post-17660921165335619652011-03-11T21:04:45.652-06:002011-03-11T21:04:45.652-06:00aww I'm so sorry hun :( *hugs*. People don...aww I'm so sorry hun :( *hugs*. People don't understand that when we have our symptoms.. they're ten times worse than what reg. healthy people would be dealing with, and we have to deal with them on top of a ton of other horrible symptoms. It's very frustrating, and you have every right to be mad and upset about having dysautonomia. Even a good day is never actually a good day. I wish I could be there to help you out!Anonymousnoreply@blogger.com