Thursday, June 16, 2011

Dysautonomia - video 3

Just realized I never blogged this video! It was video number 3 taken June 4, 2011.

Thursday, June 9, 2011

Oh Come Let Us Adore Him - Christmas 2010

Me singing at church during the Christmas Program. It's rare for me to be able to do this, especially lately and I really love singing. Hope you enjoy it.

Last Night

Last night I cried for you
My tears flowed like rivers
with no end in sight.

Last night again I mourned
Feeling helpless in the situation
Knowing that I've lost you

Last night like a ton of bricks
Your absence was smothering
The air was thick with sadness

Last night again I was reminded
Of what we once had
Of what we once did freely

Last night I was alone
The air being sucked from my lungs
A feeling of helplessness covering me

Last night you failed me again
And terror filled my very being
It's the not knowing what minutes hold that pains me

Last night the darkness enveloped me
Like a fog of loneliness
Because you left me helpless

Last night I cried for you
The life that once was
The freedom that once lived

Last night you showed me your absence
What life is like without you
That every day is scarier with your loss.

Last night I sat helpless in the shower
As the water washed away my tears
Tears shed of a body no longer well

Last night again it hit me
You are gone leaving a vulnerable shell
You, my health, are gone.

Wednesday, June 8, 2011

Dysautonomia Update 4 - Specialist Visit

Hey Corrine, I hope if you see this it will give a few answers to the comments you've left recently.
The garden is looking great. I was able to get a lot done of the space of a few months when the weather was cool enough and my daughter was a great help to me as well. We have a youtube channel. Just look for emsapowell and you can see all our vids on the garden, family, pets, and dysautonomia there. Kiah now has a new penmate, Bandit. He was my mother in laws dog and she couldn't keep him anymore and we couldn't see him go back to the shelter, so we took him! He's an awesome dog. Kiah is jealous and bothers him constantly when we are around, but when we're out of sight they are best We have 4 cats and 4 kittens (almost 4 weeks old) and another litter on the way! I'm going to lose my mind before we get them weaned and homes Gotta get them fixed this year for sure so this doesn't happen again! We also still have the hamster, although I am wishing he'd go on to hammy And we got a turtle last week. My daughters are HUGE animal lovers, so they are loving our new place and all the freedoms they've aquired that apartment living did not allow!
As far as my blacking out. I was expecting it as it got hotter. My body just does not accept or tolerate the heat and it seems to jumpstart and kick my symptoms into overdrive. We are working (my dr. and I) on getting the right meds, but even with the meds I have problems. The video from my appointment on Monday may offer some answers, so I have new Dr.'s to see. I wish I had insurance, but we'll just keep praying and trusting in God and everything will be fine! I hope you are having a great day and PLEASE do hit me up on Skype when you can. Again, my name on there is emsa_powell.