Tuesday, December 20, 2011
Anyway, Merry Christmas and I'll see you next year! :)
Sunday, October 23, 2011
This week I have yet another Dr. appointment for the girls. The four year old has a follow-up with her pediatrician about her new allergy meds and my seven year old has shots. Oh and both are getting their flu shots. So another week and another doctor visit. It's like we never leave those offices anymore!
On a better note we have both girls Halloween costume bought and they are looking forward to Halloween. I think their favorite part is getting all dressed up as whatever they want to be... well almost anything they want to be. I mean I've got to draw the line somewhere and I draw the line at trampy looking costumes and ghoulish costumes. But I never really have to govern in this area to much because at this points my girls are still vying for those cute little butterfly and barbie costumes! So the upcoming weekend will be full of cuteness ( my girls of course!) and candy and trunk or treating at church. So in between all this we are still homeschooling this week. Last week was a light week considering the surgery and all. But we have plenty of days already and plenty of time if we need it. So until next time have a less tiring week than I've had! :) God Bless!
Thursday, October 6, 2011
Wednesday, August 10, 2011
Anyway, they are doing so good! I'm very proud of them. They have very different lives from children who haven't got a sick parent, but they are exceptional little girls despite or because of my illness... who can really say for sure! I do know this.... they are very compassionate and very prayer and God believing little girls because of the life we live! It's amazing watching them grow up, sometimes WAY too fast for my liking, but yet they are growing up knowing and loving God and life around them. I pray that they see that I take no moments for granted and I strive to enjoy every moment available to me... and I do believe they see this because I see it with their own little lives!
We don't have a typical structured school day. Some days we start early and are done by lunch. Some days we eat lunch and then school and are finished by mid afternoon. It just depends on what works for that day. Yet every day has it's routine. They do their chores before school and earn their points to cash in on Eric's payday for their allowance. This is something new and they are doing GREAT with it! Then we eat either breakfast or lunch, depending on the time, followed by school. And they have the rest of the day to pretty much be kids!
That doesn't mean that it is "learning-free" time though. We still do activities they learn from. Gardening is one of our favorites to do together. Working with the animals is another. Both of my girls want to be some form of animal doctor when they grow up. So I think it's important to let them learn the responsibilities of working with animals. When we are working with the garden they are learning so much that can help them in their adult lives as well as current school work with science and math. It's amazing where you can tie in school with every day living!
Anyway, that's pretty much been what's going on life wise. Health wise I am struggling with extreme nausea, headaches, heart rate fluctuations, blood pressure doing it's own thing, sleep is insanely messed up, blurry vision, all over aches, and on and on.... It seems like my body is just in a weird funk and can't pull through it. But God will grant me strength to get through each day and I'll make it! So if I look or sound funny in the meantime, just laugh WITH me about it...lol Can't go through life without finding humor in what ails us! Until next time, God Bless and keep fighting Dys! Love you guys!
Thursday, August 4, 2011
So topic for today is SLEEP! I have been sleeping SO much. Just can't seem to get rested enough. I guess my body finally said, "OK! ENOUGH!!!" and now every chance it gets it sleeps.
Like I said, we've had a LOT going on. I still don't know how I made it through everything other than strength from God! Our church's had a State Convention and our church was on program to lead worship for one of the services. So we had practices for that, but I didn't make it to all of them due to not feeling well. Then my husband had dental surgery so we stayed with his mom for a few days in case he needed a ride back to the Dr. since I can't drive... not to mention he was VERY sick and I don't handle vomiting and things well...lol Then there was the state convention. Then I had a few days to rest up and my family from S. Ga drove up and stayed from Sun. through Thurs. And I've pretty much been sleeping since they left. Not always restful sleep, but sometimes sleeping so deep no one can wake me. Anywho...
Quick shout out to my mom. Today's my mother's 50th birthday and again, I'm stuck here in B'ham AL unable to travel to be with her on her big day. I miss spending birthdays and other holidays with my family. But I hope she has an awesome day today! My mother is the best! I love her with all my heart and can't wait for the day when they are able to move closer or something. I really miss them! It's been 9 + years now that I've been living here in Alabama and apart from my family. I love it here though and can never imagine living anywhere else. Good thing is they also love it up here and hope to move in the next few years I think. That would be awesome! Maybe then I can handle the trip well enough to visit them! Anyway, Happy Birthday to you mama.... I love you VERY much! You're the best!
Signing out until next time, Miranda
Thursday, June 16, 2011
Thursday, June 9, 2011
My tears flowed like rivers
with no end in sight.
Last night again I mourned
Feeling helpless in the situation
Knowing that I've lost you
Last night like a ton of bricks
Your absence was smothering
The air was thick with sadness
Last night again I was reminded
Of what we once had
Of what we once did freely
Last night I was alone
The air being sucked from my lungs
A feeling of helplessness covering me
Last night you failed me again
And terror filled my very being
It's the not knowing what minutes hold that pains me
Last night the darkness enveloped me
Like a fog of loneliness
Because you left me helpless
Last night I cried for you
The life that once was
The freedom that once lived
Last night you showed me your absence
What life is like without you
That every day is scarier with your loss.
Last night I sat helpless in the shower
As the water washed away my tears
Tears shed of a body no longer well
Last night again it hit me
You are gone leaving a vulnerable shell
You, my health, are gone.
Wednesday, June 8, 2011
Friday, May 27, 2011
So I've been slowly building my garden up for about 4 months now. Started some seeds and realized WAY too late that I really had no clue! We didn't label anything, so had no clue what was sprouting. But it was fun times for me and the girls, just sitting on the porch floor in the shade putting tiny seeds into tiny starter pots. We probably lost about 75% of the flower seeds we planted because we did things wrong. But the veggies we have are thriving! Lots of blossoms on the veggie plants and we can't wait for fresh tomatoes, cucumbers, cantaloupe, beans, corn, etc. It's a small amount of each, but it'll be fresh! We also planted lettuce. Of course we did it wrong, so instead of getting the beautiful big heads of lettuce, we had a massive patch of green baby lettuce, but it tasted SO good! This was my daughters tiny garden patch and she has been so proud of it! I'm proud of her too!
Next year we'll be a little more garden savvy and wiser. The girls will be a year older and I'm sure they'll be doing more than they did this year. I'm limited to what I can do, but like everything else since I've been sick, I've learned that if I think about it... there is a way to do things. I've learned there is plenty of time during the day and if I do 5 or 10 minutes here and there then by the end of the day I've accomplished a half hour or so of outside light gardening and this is a great satisfaction to me. It's been a while since I have had anything that I could do so little of but get such huge rewards!
The disease is on the warpath again though. Blackouts are weekly again and they are back in the 1 hour time frame. Also the seizes and full body tremors are back with a vengeance. I really love the summer because it's so green and lush, but man does this heat aggravate and trigger my symptoms! So my time in the yard is getting shorter and shorter, but due to the massive amounts of shade we have, if I have a fan on the porch blowing directly on me and I'm in the shade I can at least listen to the birds and stuff and that's nice. I've missed that so much. At the apartments we lived at all these years, there just wasn't a place I could enjoy like that.
I have another Dr. appointment next month. I really am dreading it. I was supposed to call if the heat started messing things up with the symptoms, but I am really trying to hang in there with the meds I have now. I guess deep down I know that the meds need to be adjusted, but it's so nice only taking meds once a day.
See, my Dr. and I discussed the option of adjusting my meds based on the temperatures. Hot weather is a HUGE trigger for my symptoms so they are more severe during the warm-hot weather and less severe during the cold. So we are trying this out to see when I need more or less meds.
I'm also still waiting on my disability appeal hearing date. I really wish they'd get this thing rolling. Anyway, it's almost midnight. My sleep is really messed up (another thing that always seems to mess up when it warms up) so I need to lay down and TRY to sleep, but it'll take a couple hours or more just to fall asleep. So goodnight everyone and I hope that you are having a fabulous day while you are reading this! God Bless!
Wednesday, April 13, 2011
Thursday, April 7, 2011
Tuesday, April 5, 2011
So, on a different note, this is my last few days of saying I'm in my twenties. I will officially cross over into the land of the big THREE OH in a couple weeks. I'm kind of having mixed feelings. Mostly because I'm sure there won't be any type of celebration... it'll just be another day. And the other reason is I never thought I'd be turning 30 and unable to do things that I had hoped I would be able to do by now and there are things that should be so easy to do, yet they are a daily struggle for me. But on a better note, I believe I've become a stronger person and each day I find strength I didn't know I had. Not necessarily physical strength but emotional and mental strength.
So I'm going to hold my head high and move into my 30's knowing that life has been really rough for the last couple years BUT I've made it and I'll make it through the next years of struggles! I've accepted that my disease isn't going anywhere unless I'm miraculously healed by God. I've accepted that this may not be in His plan for me as well. So I try and live my life to the fullest that my body will allow. Sure, I don't get to do as much as others my age, but I live and each small task I complete I feel as if I'm an Olympian who just won gold! So live life to YOUR fullest! Don't try and live to others measures because that leaves us feeling empty. Find goals that you can meet with your bodies limitations and no matter how slow you go to meet them, work every day for that goal. Life is better when we have plans and goals and dreams. Never lose those!
So here's to all my POTSY friends out there... Keep Living, Dreaming, and Pushing for those Goals! Love you all!
Saturday, March 12, 2011
I will follow up with my Dr. on Monday, and in the meantime I at least have something for the nausea and pain, although Lortab does little for the pain. Until next time....
Thursday, March 10, 2011
I have so many things that I want to do! Places I would love to see. Events I would love to attend. Just hobbies that I wish I could pursue with extreme gusto instead of hit and miss learning and experience because I'm stuck indoors more than anything else. I just wanna be the person that I know that exists inside this broken body.
Just journaling down the events of the last few minutes. We ate lunch and within 20 minutes of finishing lunch I have gained an overwhelming, bring tears to my eyes, painful headache. It was instant in it’s happening. Also blacked out a few times I think. Feel really nauseous and weak. This isn’t the first time in the last few weeks that symptoms started flaring almost immediately after eating. Makes me really not want to eat at all. I’m not sure what the link is, but there has to be something. Anyway, just wanted to journal this down real quick before I forget. The pain in my head is awful. I’m accustomed to headaches due to having one every day since I was about 12, seriously. So when I say that my head is hurting to the point of tears, then that’s saying something. Anyway, I’m going to continue laying here on the sofa in hopes that soon the pain and all will stop in it’s intensity.
Monday, February 28, 2011
Friday, February 18, 2011
Something I was able to do this week that I've not been able to do since I guess early spring of 2010 was build a small fire outside with my girls and we roasted hot dogs and ate outside. THAT was fun! Just sitting around a crackling fire under the moonlight with my girls is in itself one of the greatest events this week! Oh and I was able to go to a salon today and get a hair cut!!! I've not been able to go and sit at a salon in I guess 8 months at least. I've just been letting my husband trim my neckline or I lean my head over and run his trimmers over the bottom of my hair. Trust me, it wasn't a great look! And for the last 4 months at least I wasn't even able to do that, so I was getting pretty bushy and shaggy and now I've got a great new short do and I love it! Thanks to Supercuts in McCalla taking walk-ins it will likely be easier for me to get the occasional trim and shape now because appointments are hard for me to keep. I never know when a good day will hit and usually there are no appointments at the last minute, so I'm a huge fan of the "walk-in" now!
Now even though fatigue has pretty much been absent for the last 5 days there are many other problems that just seem to love to hang around. The ability to think clearly has been hit and miss for some time now. Getting dizzy and grasping for support from anything near me to stabilize my dizzy and falling body is an almost constant as well. Tachy has been really bad also, but hopefully my appointment on Tues morning I can address all my problems with my Dr. The warmer weather is moving in and I'm feeling my symptoms creeping back in on me as it warms up. I'm definitely not looking forward to the 70+ temps around here but they are a given when you live in the south and I'll adjust! Until next time I'm going to just sit around here waiting on my family to hopefully arrive sometime before midnight tonight. I can't wait to hold my beautiful new niece and there will be LOTS of photos to come of my weekend with my family! Have a DYS-free day and I'll catch ya later!
Thursday, February 3, 2011
This week we were in revival from Sun. -Wed. nights. I was able to attend on Sunday night, Tuesday and Wednesday nights. I did have a hard time with the Dys. though. The last night was better though. Had trouble with dizziness and fatigue, but on Tues. night my right leg quit on me. I'm thinking it was a silent migraine since I was having the confusion and tingling beforehand. Who knows anymore. I've just come to realize that weird things are going to happen. So what if I have to drag a leg while I leave church, at least I got to go! The youth revival was awesome though! I'm so proud that our youth were mostly able to be there every night. One thing was said that really struck a chord with me. These youth don't have anyone in their personal lives telling them about God or Jesus! Coming from a home where I was raised on the front pew later becoming a preachers kid, that blows my mind! I'm so proud of our church for stepping in and giving these kids the option to come to church and learn if they choose to!
Oh, and the other bit of news, I got denied my disability this week again. So I just put in a call to my lawyer to find out the next step. It's frustrating to say the least. I cried. The judge actually stated that because I was able to go to church and sing that it counted against me! What he failed to note was that yes, I can do that "occasionally" but I do blackout afterwards, I am sick for days afterwards. But it's the one joy ouside of my children and family that I have left! I can't just give it up entirely! Plus I think my notice stated that since Dysautonomia isn't listed as a disease or something and I have no mental disease, that was counted against me. Such strange rules they have for figuring things out. Hopefully my lawyer will help me get it worked out. Well, my lawyer and tons of prayer! I know that God is able to step in and with Him all things are possible, just waiting on His timing sometimes is difficult!
Anyway, that's been my week so far. I hope yours has been as good or better! Have a great day and be blessed in the Lord!
Monday, January 24, 2011
Wednesday, January 12, 2011
The outside of our home is still frozen. The back is starting to melt but the front porch still has over an inch of ice frozen solid. The front of the house still has icicles hanging everywhere as well. But the shelter that we built for our cats did hold up and it looks as if they did use it. I know when we pulled up that Grey was coming out of it, so that made me feel better about the freezing weather and their being outside. I stuck my head inside their "cat cave" and it was a great deal warmer than outside so that was good.
I really need to be doing things around the house like unpacking our clothes we took with us and putting everything back up, but right now I'm so cozy sitting in this warm jacket (yes, i still have my coat on!) so I really don't want to get up and do anything. Cold weather days like this make it so easy to just curl up with a book or a movie! Although with the headaches I've been having reading isn't a good option for me. Maybe a movie later though!
So for all you out there with warm weather, enjoy it! For those of us in the Southern U.S. who just aren't accustomed to this cold weather, stay warm!
Monday, January 10, 2011
Regardless of the forecast that just didn't work out for us here in McCalla, Alabama we have still had a great couple of days. My mother in law cooked a huge pot of chili and we ate on that yesterday. It was great as always. Pretty much snacked the rest of the day while we watched ice fall from the heavens. The kids have been stuck indoors but between all the laptops and televisions here they haven't gotten bored. Not to mention the playroom that Granna has fixed for the grandkids. We've all sat around watching movies, news, and Little House on the Prairie. I've come to the conclusion that I hate ice storms and the spoiled little girl on the prairie! I did get outside and take a few photos of the ice. Even though ice isn't fun it can still be beautiful. So here's hoping you have gotten the forecast you had hoped for over the last few days. For those north of us in Alabama with 5 inches and more of snow, I hope you enjoy it! Because next time we're calling dibs on the snowfall! *smile*
|Ice on a bush. Not sure what kind, but Big Mama called it a Fire Bush.|
|Icecicle melting as a drop falls from it.|
Saturday, January 8, 2011
Wednesday, January 5, 2011
First I know that you're probably looking at my photo of food bought and saying WHAT!?! at the amount of croutons I bought, but I can assure you they won't go to waste. My kids like a handful or so as a small snack, so when I find them on sale I buy as many as possible. Also, my kids and husband are Peanut Butter fanatics, and that peanut butter might last a month if I'm lucky... seriously! So here' the breakdown of what I got today. The (D) means that the coupon was doubled by the store.
10- New York Texas Toast Croutons - sale .99 : coupon .50/1 (D) : Final Price: FREE!
01- Crest Baking Soda/Peroxide Toothpaste - Sale 1.50 : coupon $1/1 : Final price .50
03- Ore Ida Hash Browns *3 dif kinds* - Not on sale 3.25 : Coupons $2/1 Target and $1/1 Manuf. : Final price .25 for two of them and 1.25 for one bag (only had 2 manuf. coupons) TOTAL: 1.75 for 3 bags
03- Bags Banguet Chicken (fingers, popcorn, strips) - Sale: 2.75 : Coupons None : Final : 2.75 each.
04- Birds Eye Voila' Frozen Meal - Sale 1.97 : coupon .50/2 (D) : Final 1.47 each
06- Birds Eye Frozen Vegetables (corn and green beans) - Sale .89 - Coupon .50/2 (D) - Final .39 each
08- Peter Pan Peanut Butter - Sale 1.25 : Coupon .50/1 (D) : Final .25
Price before sales and coupons : $88.36
Price after sales and coupons : $23.75!
Sales savings was $32.61
Store Coupons $17.50
Vendor Coupons $14.50
TOTAL savings of 64.61!!!
|the 3 bags of Banquet Chicken Tenders, popcorn chicken, and nuggets were already put up so they aren't pictured.|